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To improve support for Alzheimer’s caregivers, we are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease.
By participating, you’ll have the chance to reflect on your experience, identify gaps in current services, and help shape resources that better support caregivers like you. You may also learn about services you didn’t know existed. Your input will directly inform more responsive and timely support for caregivers and people living with Alzheimer’s. As a service provider you will be better equipped to refer clients to available resources that can address their current challenges.
# Who can participate?
# Caregivers
- Adults aged 18 or older.
- Provide caregiving to someone diagnosed with Alzheimer’s disease or related dementia.
- Have been involved in caregiving for at least six months.
- Able to speak and understand English.
# Service Providers:
Service providers will include healthcare professionals (e.g., nurses, geriatricians, social workers, home care aides, etc.) and staff from organizations that provide Alzheimer’s disease-related care and support services.
- Adults aged 18 or older.
- Deliver care or support services (e.g., medical, social, or community-based services) to individuals with Alzheimer’s disease.
- Able to speak and understand English.
# What's Involved?
Service providers will engage in focus group discussions which will inform the design of an asset map, while caregivers will engage in a one-on-one interview describing their experiences accessing services for Alzheimer’s or other related dementias.
- Both the focus group discussions with service providers and the one-on-one interviews with caregivers will take place online, via Zoom or Teams.
- Participants will sign a consent form and fill out a demographic questionnaire before proceeding with the interviews.
- Interviews and focus group sessions be approximately one hour long.
- Participants will receive a $25 gift card as compensation.
# Next Steps
Read the consent forms for caregivers and providers Editable Word versions are available for download here (caregivers) and here (providers). To learn more or sign up, please email : ekemeziw@mcmaster.ca.